Misc Resources (Clinical & Grant)
- Emma Joo (Unlicensed)
- Samantha McDonald (Unlicensed)
Resource | Description | Link |
Core for Clinical Research Data Acquisition (CCDA) | The Core for Clinical Research Data Acquisition (CCDA) assists researchers with accessing clinical data for research purposes. The CCDA is staffed with experienced data analysts who will assist you with access to data while also helping you comply with Data Trust privacy and security regulations. | |
TriNetX | TriNetX is a self-service web-based data exploration tool which helps clinical researchers to define a patient cohort using inclusion and exclusion criteria and to explore cohort attributes. | https://ictr.johnshopkins.edu/programs_resources/programs-resources/i2c/trinetx/ |
Accrual to Clinical Trials (ACT) | The ACT Network is a real-time platform allowing researchers to explore and validate feasibility for clinical studies across the NCATS Clinical and Translational Science Award (CTSA) consortium, from their desktops. ACT helps researchers design and complete clinical studies, and is secure, HIPAA-compliant and IRB-approved. | https://ictr.johnshopkins.edu/collaboration/collaborations/accrual-to-clinical-trials-act/ |
Informatics Grant Text | Text that investigators are encouraged to use for their grants. | https://ictr.johnshopkins.edu/programs_resources/programs-resources/i2c/informatics-grant-text/ |
Informatics Letters of Support | Information about how to receive letters of support on official letterhead. | |
Informatics Study Recruitment | ICTR Informatics Core provides multiple tools and services for study recruitment including SlicerDicer, Core for Clinical Data Acquisition (CCDA), Epic MyChart patient portal, and PACE | |
Program to Accelerate Clinical Research using EPIC (PACE) | PACE was established to help clinical researchers take full advantage of tools within the EPIC Electronic Health Record system for their research projects. | |
Clinical Research Management System | CRMS is a web-based tool designed to organize and streamline clinical research management designed to improve communication among study team members. | |
International Laws on Data | Compare data protection laws around the world | https://www.dlapiperdataprotection.com/index.html?t=world-map&c=RU |
Natural Language Processing (NLP) | Natural Language Processing (NLP) is a programming technique to find and extract data of interest from text documents. | https://ictr.johnshopkins.edu/programs_resources/programs-resources/i2c/natural-language-processing/ |
Data Deidentification | Data deidentification involves the removal of personal identifiers such that the data cannot be re-identified. | https://ictr.johnshopkins.edu/programs_resources/programs-resources/i2c/deidentification/ |
Research Registry | Guidance regarding what constitutes a registry and the technical standards that must be met by such registries. | https://ictr.johnshopkins.edu/programs_resources/programs-resources/i2c/registries/ |
Vivli Data Sharing Platform | A user-friendly, secure, state-of-the art data sharing and computing platform. | https://ictr.johnshopkins.edu/programs_resources/programs-resources/i2c/vivli-data-sharing-platform/ |
Mobile App Solutions | Guidance regarding the creation and branding of apps at JHU. | |
Data Informatics Services Core (DISC) | The Data Informatics Services Core (DISC) collaborates with research faculty and staff from the Johns Hopkins Medical Institutions, offering several options for this collaboration depending on the researcher's needs and interests. Includes assistance in developing and implementing, or reviewing, data capture tools and data management systems. | |
Library Departments | The five Sheridan Libraries — the Milton S. Eisenhower Library, the Brody Learning Commons, the Albert D. Hutzler Reading Room, the George Peabody Library, and the John Work Garrett Library — provide the major research library resources for Johns Hopkins University. | |
Welsh Medical Library Services | Welch services are available to faculty, staff and students in academic departments and affiliated hospitals and clinics of Johns Hopkins University and Medicine. Includes: Citation Management, Evidence Based Practice, Scholarly Publication, Seeking and Managing Grants, Systematic Reviews, Teaching and Course Administration, Tracking Research. |
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